Meet the Volunteers!

These fabulous individuals are making a difference Volunteering their time with us! Be sure to tell them Thank You for helping to make a difference when you see them!

Sheilah pic

Sheilah Kring

Director of Education and Research

Sheilah says, "It was incredibly serendipitous that prior to the onset of my disability that I had spent years working in complex health care needs, disability, advocacy, had two master’s degrees and was working on a Ph.D. researching health care.  I even had great health care and knew some incredible doctors.  Still, even with all of those resources it took many years and many doctors to finally get diagnosed with EDS and several other related disorders, and I had far too many ‘close calls’ before I got a comprehensive health team and access to the treatments I needed to stabilize things.  I became keenly aware that the difficulty in my journey, even with all of the resources at my disposal and the medical providers who went an extra mile to keep me here, speaks volumes for the countless others who lack those same resources.  Since my diagnosis, I spend much of my free time keeping up with EDS-related research and sharing whatever I can with other patients and providers, as well as administrators, whenever possible. I simply want the current generation to be the last generation that struggles with diagnoses and treatment options for EDS, and I firmly believe we can work together  to make that happen."

Mariah Liisa Holterman

Mariah Liisa Holterman

Graphic Designer

Current city: Madison
Profession: Designer and Retail Manager
Education: Attended the Milwaukee Institute of Art and Design, earning a BFA in Illustration.

Check out her website at www.MariahLiisa.com

Welcome to the team Mariah! We love Mariah Liisa's positive outlook and that she is a hard worker. We look forward to working with you!

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Christine Quackenboss

Milwaukee Area Support Group Leader

Hello! I live in Eden, WI with my husband (Chuck) and our dog (Remy). We have three grown children and 3.33 grandchildren (who are the light of our lives!).

My career is Manager-Distribution Network Planning & Operations - K&BA, which really means that my awesome team creates the strategy, alignment, and execution of finished goods to customers in the most efficient way possible. I also teach part-time at Lakeland University (Supply Chain, of course!), lead/participate in a book club for professional/personal growth, past president for WIMI (Women in Management)-Sheboygan chapter, and now....very excited to be the Support Group Leader for EDS, WI - Milwaukee!

I was formally diagnosed 12-21-2017 (we all have that date in our hearts! The confirmed "not crazy" date!). Still waiting for DNA tests between Classical or Hypermobile. My motivation for volunteering was first, to meet others that run out of spoons on a daily/weekly basis, and then quickly came to realize, there is so much more to this. There is strength in numbers, there are so many Zebras to be found and it is great to know that we are not alone....we are a group...we are a ZEAL of Zebras!

I want to connect, bounce ideas, and make new friendships that I hope last a very long time!

sally j

Sally Jolles

Assistant Researcher

Director of Education and Research

Sheilah says, "It was incredibly serendipitous that prior to the onset of my disability that I had spent years working in complex health care needs, disability, advocacy, had two master’s degrees and was working on a Ph.D. researching health care.  I even had great health care and knew some incredible doctors.  Still, even with all of those resources it took many years and many doctors to finally get diagnosed with EDS and several other related disorders, and I had far too many ‘close calls’ before I got a comprehensive health team and access to the treatments I needed to stabilize things.  I became keenly aware that the difficulty in my journey, even with all of the resources at my disposal and the medical providers who went an extra mile to keep me here, speaks volumes for the countless others who lack those same resources.  Since my diagnosis, I spend much of my free time keeping up with EDS-related research and sharing whatever I can with other patients and providers, as well as administrators, whenever possible. I simply want the current generation to be the last generation that struggles with diagnoses and treatment options for EDS, and I firmly believe we can work together  to make that happen."

Amy Adams

Amy Adams

Paralegal 

Amy earned her Paralegal Degree from Rasmussen College in Wausau, WI.  She is disabled and she is  knowledgeable about disability. She says, "I volunteer because it's important to bring awareness to these diseases for further research."  Amy loves doing crafts and she is planning her wedding for April 2018.

Stephanie Goettl

Stephanie Ann Goettl

Blogger and Advocate

Stephanie is a 27-year old EDS patient living in southern Wisconsin and while she considers that having EDS makes her a qualified blogger for the site, she thinks her strength and love of advocacy are more important parts of why she's qualified to write here. Stephanie is a dedicated advocate for EDS patients, after more than a decade of waiting to understand what was happening with her own body. Her empathy for patients gives her a unique perspective in her writing, particularly for young adults or parents looking for insight into how to handles their children's needs as EDS patients.

Outside of her own medical needs and working with EDS Wisconsin to blog, Stephanie manages a student rental company and has served on the Common Council for her city since she was 20 years old, part of her advocacy streak. Stephanie is absolutely obsessed with her 1-year old Papillon puppy, Essex and is currently planning a summer wedding to her long-time boyfriend, Nathan. 

She looks forward to sharing with you here and would love any and all insight you have for her blog! 

 

Angela Braun

Wausau Area Support Group Leader

More info coming soon!

Beth Wroblewski

Kids & Teens Support Group Leader

More info coming soon!

Tracy J

Tracy Joyner

Volunteer Graphic Designer

Tracy says "My main motivation for volunteering is to connect with others with the illness and form a sense of community. Myself and many others feel very lonely with this illness. In creating this sense of community I believe we can help others with treatment, awareness, and an overall quality of life."

Tracy has her Associates Degree in Business Administration. She was diagnosed in 2015 with Hypermobility Type of EDS and osteoarthritis. She has been married for 12 years and has 3 children.

 

Dawn Zangl Dembosky

Milwaukee Area Support Group Leader

More info coming soon!

Damon Webster

Assistant Researcher

More info coming soon!

Joe Windeknecht

Graphic Designer

More info coming soon!

More Volunteers!

Tammy Price

Online Support Group Meeting Leader

More info coming soon!

Michael Price

Online Support Group Meeting Co-Leader

More info coming soon!

Hunter Stark

Tech Support and Event Helper

More information coming soon!

Lisa Klatkiewicz

Awareness and Research

More info coming soon!

Deb Klecker

Volunteer Psych Advisor and Milwaukee Area Support Group Co-Leader

More info coming soon!

Tracy Diehl

Office Support

Hi, My name is Tracy Diehl. I am originally from Wisconsin, but now live in Georgia.

I was diagnosed with Ehlers-Danlos hypermobility type in 2007. Since then, I am always in search of the best strategies to care for my EDS body--understanding that it is important to be your own best advocate. Searching the internet, I have found some informative resources. I enjoy researching and finding different types of ideas. Through EDS Wisconsin, I have been given an opportunity to share some of my research with you and I am looking forward to expanding my knowledge and research even further. I thank the organization for allowing me this opportunity!

Andee Anderson Dunn

Office Assistant

More info coming soon!

CJ Dunn

Assistant

More info coming soon!

Andrea Robinson

Sales and Marketing

More information coming soon!