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Our mission is to provide SUPPORT & RESOURCES for MEDICAL PROFESSIONALS & PATIENTS affected by Ehlers Danlos syndromes (EDS) and related disorders. TOGETHER WE ARE STRONGER! |
What are Ehlers Danlos Syndromes? |
Click here to read an important article by Dr. Alan Hakim |
Support and resources for medical professionals and patients affected by EDS remain limited. EDS frequently goes un-diagnosed for many years causing patients and medical professionals unnecessary suffering. Diagnosis is validating and empowering for patients, their loved ones and medical professionals! Early diagnosis enables proper treatment strategies, fewer unnecessary medical visits, and prevents injury.
Thank you to the Sponsors and Volunteers who helped make Meagan’s HOPE 2019 a big success!