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Our mission is to provide SUPPORT & RESOURCES

for MEDICAL PROFESSIONALS & PATIENTS

affected by Ehlers Danlos syndromes (EDS) and related disorders.

TOGETHER WE ARE STRONGER!

 

What are Ehlers Danlos syndromes?

What are Ehlers Danlos Syndromes?

  Why diagnose Ehlers Danlos syndromes?

Click here to read an important article by Dr. Alan Hakim

 Possible Symptoms of Ehlers Danlos Syndrome

Click on the image to learn more about EDS.

Support and resources for medical professionals and patients affected by EDS remain limited. EDS frequently goes un-diagnosed for many years causing patients and medical professionals unnecessary suffering. Diagnosis is validating and empowering for patients, their loved ones and medical professionals! Early diagnosis enables proper treatment strategies, fewer unnecessary medical visits, and prevents injury.

 

 

Thank you to the Sponsors and Volunteers who helped make Meagan’s HOPE 2019 a big success!

Meagan's Walk 2019

 

Together we are stronger!

Let’s stay in touch!
Make sure you sign up for our email list to be notified of future events, updates, and other on-goings!

Featured Post

  • 2018: A Dazzling Year

    Press Release April 11, 2019

    Thank you for supporting EDS Wisconsin in whatever way you can–and there are many. Your support through monetary contributions, event attendance, social media presence, supporting patients through mentorship and listening, following our blog, and even just by having an awareness of our experience with...

    read More

Thanksgiving Thoughts

November 24, 2023

Advocacy: Doing the Most

November 14, 2023

“I’m Mild”

November 12, 2023

EDS Awareness: All THOSE Bruises

May 4, 2020


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Become a sponsor and save lives!

Donate

Help us to provide support and resources to Wisconsin patients and medical professionals about Ehlers-Danlos Syndromes and related conditions via education and research.

 

Strengthening Connections, Inc. is a non-profit organization that operates entirely on the generosity of people of people like you.  We are not corporate or government supported or sponsored, and therefore, we must call upon those who support our mission to also aid our mission.  Together, we can reach more people and save more lives.

Strengthening Connections, Inc. operates solely on volunteers and donations.  Your cash donations are used solely to fulfill our mission of providing support, research, resources and education to patients and medical professionals throughout Wisconsin and beyond.

Sign up to receive email updates here!

Items Needed

Cash donations are the most helpful. Below is a list of items that we currently need.  To make a donation, please contact us using the form below, and we will get in touch with you as soon as time allows.  Thank you.

  • Our biggest need is printing! If you or someone you know is able to get printing donated to us, please contact Emily at [email protected]
  • Printer ink – HP 201
  • Postage
  • Brochure printing
  • Check back soon…

Contact Us

    Learn More Or
    Email Us At [email protected]

    Our Volunteers

    Emily Ramthun

    Event Planner, Executive Assistant, and Patient Advocate

    Hello, my name is Emily. I am very excited to be a part of EDS Wisconsin, Inc. Within the organization I like to help connect those in need (with a specialty in Dysautonomia, young...

    Andee Dunn

    IEP and 504 Plan Advisor

    Contact Andee at [email protected]

    Michelle Stevens

    La Crosse & Online Support Group Leader

    Contact Michelle at [email protected]

    Nikki Weber

    Milwaukee Support

    Mariah Liisa Holterman

    Graphic Designer

    Current city: Madison Profession: Designer and Retail Manager Education: Attended the Milwaukee Institute of Art and Design, earning a BFA in Illustration.

    Jennifer Erdman

    Northeastern Wisconsin Support

    Tom Young

    Director of Development

    Damon Weber

    Assistant Researcher

    Testimonials

    What people are saying about us…

    • EDS Wisconsin is very helpful-excellent resources, knowledgeable leaders, assistance finding EDS aware providers, excellent support groups and much more. Finding peer support is enormously beneficial. Knowing that others understand your circumstances and support you is invaluable. It is an honor to know the members and leaders of this organization. ???

      Stacey Slottey
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    • Tammy Kosbab is a dedicated individual who has seeded and grown this organization at an incredible rate in it’s first year and continues to keep the pace. The amount of information, resources, people and live interaction to support and educate those affected with or by EDS and related illnesses and syndromes is extraordinary. Her ability to network and build this first rate educational non-profit is admirable. EDS Wisconsin, Inc. is bound to be a world class organization.

      Deb Klecker, .

    • Tammy Kosbab, co-founder of EDS Wisconsin, Inc., is extremely passionate about serving patients with Ehlers-Danlos syndromes and related disorders. Driven to improve the lives of patients in Wisconsin, Tammy works tirelessly and with great compassion. As a physician, I greatly appreciate Tammy’s organizational and communication skills as well as her dedication to bridging the gap between patients and healthcare providers. I have found Tammy to be reliable, caring and enthusiastic. It has been a true pleasure working with Tammy Kosbab and EDS Wisconsin Inc.

      Dr Linda S. Bluestein, MD.

    • Excellent resource for support and information about EDS.

      Lynn Burgess, .

    • Great resource for people with EDS in the Wisconsin area!

      Crystal Lindell.

    • This is so great! I really appreciate all the time you put into helping me be my best leader and a better person for myself and a support for others. People look to me for that now and it’s such a wonderful and awesome responsibility. I understand the gravity of it and take it seriously, even through my goofy sense of humor.

      Michelle Stevens.

    • Thank you all for your kindness, thoughtfulness, and time you put into helping me get a computer. I’m so incredibly grateful! The surprise Tammy, Brandy, and Tyler pulled off was one of the most amazing experiences. This literally opens up my world. I now have the opportunity to do things I could never do before and had only dreamt about.

      This community has become family and I’m honored to know all of you and be a part of your family. I’m humbled to be a part of team EDS Wisconsin. This is so big, and I can see how it helps others in the present and over time. The work we are doing through volunteering improves the quality of life by directly impacting people in ways I’ve never seen other organizations or support groups do before. Thank you. Thank you Thank you.

      Michelle Stevens.

    • Most helpful support group ever, not just the ppl although their wonderfully warm, but I’ve come away from the meetings with so much more knowledge, referrals & resources! They’ve helped me connect the dots about what’s going on with me, find specialists to help me and best of all I know that I’m not alone in this journey. Some of the ppl I’ve met at the meetings have so much in common with me that I hope we’ll be life long friends supporting each other in the struggle with this rare syndrome!

      Gracie Murbach, .

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    Together we are stronger!

    Become a Volunteer OrLearn about EDS