What are Ehlers Danlos Syndromes?
Click here to read an important article by Dr. Alan Hakim
Click on the image to learn more about EDS.
Support and resources for medical professionals and patients affected by EDS remain limited. EDS frequently goes un-diagnosed for many years causing patients and medical professionals unnecessary suffering. Diagnosis is validating and empowering for patients, their loved ones and medical professionals! Early diagnosis enables proper treatment strategies, fewer unnecessary medical visits, and prevents injury.
Thank you to the Sponsors and Volunteers who helped make Meagan’s HOPE 2019 a big success!
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April 11, 2019
Thank you for supporting EDS Wisconsin in whatever way you can–and there are many. Your support through monetary contributions, event attendance, social media presence, supporting patients through mentorship and listening, following our blog, and even just by having an awareness of our experience with...
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I have a personal investment in helping others who have chronic pain conditions, EDS, POTS, Mast Cell Activation Disorders, ADHD and Autism. These disorders have affected myself and/or family members and I have spent...
Spokesperson, Blogger & Advocate
Stephanie is a 27-year old EDS patient living in southern Wisconsin and while she considers that having EDS makes her a qualified blogger for the site, she thinks her strength and love of advocacy...
President & Founder at EDS Ohio
President and Founder of EDS Ohio, Kassady Oberacker is both an EDS advocate and patient living in Cuyahoga Falls, Ohio. Her background is in Applied Conflict Management and Psychology from Kent State University and...
Board Member and Webmaster
Tsilos graduated with a Juris Doctorate degree in 2007 from UW Madison Law School. She also graduated with double majors and a Bachelors of Art degree from the University of Wisconsin-Milwaukee in 2003. Tsilos...
Madison Area Support Group Leader
President & Founder at EDS Illinois
President and Founder of EDS Illinois, Rachel is passionate about helping patients and medical professionals affected by Ehlers Danlos syndromes (EDS) and related disorders in Illinois. She is excited to utilize her extensive non-profit...
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Together we are stronger!