Why diagnose Ehlers Danlos syndromes?Click here to read an important article by Dr. Alan Hakim

Click hear to learn how to earn FREE CME credits!

Ehlers Danlos syndromes (EDS) are a group of heritable connective tissue disorders that impact individuals of all ages & genders. Frequently misdiagnosed as Fibromyalgia, Chronic Fatigue Syndrome, or various psychosomatic illnesses, EDS affects nearly every body system since connective tissue is what holds the body together like glue. Many of those who have EDS experience daily pain, excessive fatigue, increased bleeding, and they have overly flexible joints which can lead to joint dislocations, as well as many other seemingly unrelated symptoms. Support and resources for medical professionals and patients affected by EDS remains limited. Sadly, EDS frequently goes undiagnosed for many years causing patients and medical professionals unnecessary suffering. Diagnosis is validating and empowering for patients, their loved ones and medical professionals! Early diagnosis enables proper treatment strategies, fewer unnecessary medical visits, and prevents injury.

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Meagan's Walk Donation 2019
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Help us to provide support and resources to Wisconsin patients and medical professionals about Ehlers-Danlos Syndromes and related conditions via education and research.

Items Needed

EDS Wisconsin, Inc. is a non-profit organization that operates entirely on the generosity of people of people like you.  We are not corporate or government supported or sponsored, and therefore, we must call upon those who support our mission to also aid our mission.  Together, we can reach more people and save more lives. 

Below is a list of items that we currently need.  To make a donation, please contact us using the form below, and we will get in touch with you as soon as time allows.  Thank you. 

  • Our biggest need is printing! If you or someone you know is able to get printing donated to us, please contact Emily at emily.edswi@gmail.com 
  • Printer ink – HP 201
  • Postage
  • Brochure printing
  • Check back soon…

Cash Donations

EDS Wisconsin, Inc. operates solely on volunteers and donations.  Your cash donations are used solely to purchase the supplies we need to fulfill our mission of providing resources and education to patients and medical professionals throughout Wisconsin.

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Meagan’s Walk 2019

May 4, 2019 at 1:00 pm

Bookmark this page for future updates! Born December 12, 1987, Meagan Rae Braun was a kind, caring, loving individual with the most beautiful, gentle...