What are Ehlers Danlos Syndromes?
Click here to read an important article by Dr. Alan Hakim
Click on the image to learn more about EDS.
Support and resources for medical professionals and patients affected by EDS remain limited. EDS frequently goes un-diagnosed for many years causing patients and medical professionals unnecessary suffering. Diagnosis is validating and empowering for patients, their loved ones and medical professionals! Early diagnosis enables proper treatment strategies, fewer unnecessary medical visits, and prevents injury.
Thank you to the Sponsors and Volunteers who helped make Meagan’s HOPE 2019 a big success!
Together we are stronger!
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April 11, 2019
Thank you for supporting EDS Wisconsin in whatever way you can–and there are many. Your support through monetary contributions, event attendance, social media presence, supporting patients through mentorship and listening, following our blog, and even just by having an awareness of our experience with...
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La Crosse & Online Support Group Leader
Contact Michelle at Michelle.email@example.com
IEP and 504 Plan Consultant
Stacie will speak with families about school IEP’s and 504 Plans. She can be reached at firstname.lastname@example.org or 608-469-9964
President & Founder at Strengthening Connections, Inc.
Tammy J. Kosbab, BSHM, President & CEO at Strengthening Connections, Inc., is passionate about helping those with Ehlers Danlos syndromes (EDS) and related disorders since watching her mother suffer and then pass away in...
President & Founder at EDS Ohio
President and Founder of EDS Ohio, Kassady Oberacker is both an EDS advocate and patient living in Cuyahoga Falls, Ohio. Her background is in Applied Conflict Management and Psychology from Kent State University and...
Board Member and Webmaster
Tsilos graduated with a Juris Doctorate degree in 2007 from UW Madison Law School. She also graduated with double majors and a Bachelors of Art degree from the University of Wisconsin-Milwaukee in 2003. Tsilos...
Current city: Madison
Profession: Designer and Retail Manager
Education: Attended the Milwaukee Institute of Art and Design, earning a BFA in Illustration.
Educator and Madison Area Support Group Leader
Contact Leah at Leah.EDSWi@gmail.com
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Together we are stronger!