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Thank you for supporting EDS Wisconsin in whatever way you can–and there are many. Your support through monetary contributions, event attendance, social media presence, supporting patients through mentorship and listening, following our blog, and even just by having an awareness of our experience with...
read MoreNovember 24, 2023
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May 4, 2020
Help us to provide support and resources to Wisconsin patients and medical professionals about Ehlers-Danlos Syndromes and related conditions via education and research.
Cash donations are the most helpful. Below is a list of items that we currently need. To make a donation, please contact us using the form below, and we will get in touch with you as soon as time allows. Thank you.
Stephanie is a 27-year old EDS patient living in southern Wisconsin and while she considers that having EDS makes her a qualified blogger for the site, she thinks her strength and love of advocacy...
Stacie will speak with families about school IEP’s and 504 Plans. She can be reached at [email protected] or 608-469-9964
President and Founder of EDS Illinois, Rachel is passionate about helping patients and medical professionals affected by Ehlers Danlos syndromes (EDS) and related disorders in Illinois. She is excited to utilize her extensive non-profit...
Tsilos graduated with a Juris Doctorate degree in 2007 from UW Madison Law School. She also graduated with double majors and a Bachelors of Art degree from the University of Wisconsin-Milwaukee in 2003. Tsilos...
President and Founder of EDS Louisiana, April is very passionate about helping persons affected by Hypermobile EDS, Dysautonomia, POTS and MCAS. She wants to do everything she can to help others feel supported. She...
What people are saying about us…
EDS Wisconsin is very helpful-excellent resources, knowledgeable leaders, assistance finding EDS aware providers, excellent support groups and much more. Finding peer support is enormously beneficial. Knowing that others understand your circumstances and support you is invaluable. It is an honor to know the members and leaders of this organization. ???
Stacey Slottey
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Most helpful support group ever, not just the ppl although their wonderfully warm, but I’ve come away from the meetings with so much more knowledge, referrals & resources! They’ve helped me connect the dots about what’s going on with me, find specialists to help me and best of all I know that I’m not alone in this journey. Some of the ppl I’ve met at the meetings have so much in common with me that I hope we’ll be life long friends supporting each other in the struggle with this rare syndrome!
Gracie Murbach, .
Thank you all for your kindness, thoughtfulness, and time you put into helping me get a computer. I’m so incredibly grateful! The surprise Tammy, Brandy, and Tyler pulled off was one of the most amazing experiences. This literally opens up my world. I now have the opportunity to do things I could never do before and had only dreamt about.
This community has become family and I’m honored to know all of you and be a part of your family. I’m humbled to be a part of team EDS Wisconsin. This is so big, and I can see how it helps others in the present and over time. The work we are doing through volunteering improves the quality of life by directly impacting people in ways I’ve never seen other organizations or support groups do before. Thank you. Thank you Thank you.
Michelle Stevens.
Excellent resource for support and information about EDS.
Lynn Burgess, .
This is so great! I really appreciate all the time you put into helping me be my best leader and a better person for myself and a support for others. People look to me for that now and it’s such a wonderful and awesome responsibility. I understand the gravity of it and take it seriously, even through my goofy sense of humor.
Michelle Stevens.
Any question our family has had, has always been answered. This is a judge free zone full of people who want to help one another.
Kathy Vandersteen, .
Great resource for people with EDS in the Wisconsin area!
Crystal Lindell.
Tammy Kosbab, co-founder of EDS Wisconsin, Inc., is extremely passionate about serving patients with Ehlers-Danlos syndromes and related disorders. Driven to improve the lives of patients in Wisconsin, Tammy works tirelessly and with great compassion. As a physician, I greatly appreciate Tammy’s organizational and communication skills as well as her dedication to bridging the gap between patients and healthcare providers. I have found Tammy to be reliable, caring and enthusiastic. It has been a true pleasure working with Tammy Kosbab and EDS Wisconsin Inc.
Dr Linda S. Bluestein, MD.
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