Tribute to Fallen Heroes

As Ehlers Danlos syndromes become more recognized, many of us remember individuals who have passed on either directly from EDS or from the complications that arise from having comorbid conditions. It is important to recognize that EDS can be life-threatening. As a close-knit community, our hearts are broken each and every time a loved one loses this battle. This is why we feel that we must provide support and resources to patients and medical professionals affected by EDS and related conditions. We envision a better Wisconsin where EDS and related conditions are better understood, treated and supported.

Please take some time to notice and honor each of the warriors below. If you know someone affected by EDS who has lost their battle and would like them added to this page, send a photo and obituary to

Please donate in the name of any one of them to help further our mission. Our organization relies on donations from generous supporters like you! All proceeds from this area will go toward providing education to medical professionals in Wisconsin. Your dollars will directly impact individuals in our local community!


Sandra L. McCann nee Newton 10/18/54 – 11/21/04

Sandra is the mother of EDS Wisconsin’s founder Tammy Kosbab. Sandra was the third of eight children. Sandra was a resilient and strong individual. She knew something in her genetics wasn’t right because she experienced many symptoms but was never diagnosed with EDS, mast cell activation disorder, or dysautonomia. Dispite her health struggles, Sandra’s sunny disposition could light up any room. She was a natural leader and others looked to her for guidance. Sandra was married and had three children and seven grandchildren at the time of her death at the young age of 50.

This is for you, Mom!





Everett “Newt” Jay Newton 7/26/64-5/22/17

Everett J. “Newt” Newton, age 52 of Kaukauna, peacefully began his journey to the Spirit World on Monday evening, May 22, 2017, at his home in Kaukauna with his sister Judy at his side, after a long battle with illness.





Ann Pauke -10/18/16

Andrea Lynn Pauke, age 38, of Rhinelander, died unexpectedly at her home on Sunday, October 16, 2016. She was born in Elgin Illinois on January 22, 1978, to Rodney and Constance(Smith) Hagen. Andrea loved spending time with family, especially nieces and nephews. She also enjoyed crafting, the outdoors and snuggling up with her dogs.

Andrea is survived by her husband Charles Pauke of Rhinelander, mother Constance Hagen of Rhinelander, sisters Deborah(Randy)Beauchamp of Phoenix, AZ, Christine(Raymond)Young of Wausau, WI, Kimberly(Andrew)Oldroyd of Greenville, SC, brother Timothy Hagen of the Fox Valley, and many nieces, nephews and friends. Andrea was preceded in death by her son Jordan Pauke, and father Rodney Hagen.

Dan Kaley 1969 – 2014

Daniel Lee Kaley, 45, of Kenosha, passed away peacefully, surrounded by his loving family, Friday, July 25, 2014, at Kenosha Hospital.
He was born on Feb. 11, 1969, to David L. and Barbara (Dering) Kaley in Kenosha. He was educated in the schools of Kenosha and graduated from Tremper High School.
Dan worked in restaurant management throughout Kenosha and Green Bay for several years. Dan married Melissa Mohr on July 12, 2014, in Kenosha.
Dan enjoyed singing, cooking, karaoke and loved life. Dan was known for his sense of humor, his outgoing nature, and his wide and generous heart. Dan is survived by his wife, Melissa; his parents, David and Barbara Kaley; his children, Alina Kaley, Drake Kaley, Karl Mohr, Steffen Erbentraut and Abigayle Erbentraut; his siblings, Kim-Marie Fischer and her son, Jacob, David Charles Kaley and his daughters, Natalie and Valerie and Jason Richard Kaley and his daughter, Evangeline and his granddaughter, Aubrey Herzog.

Meagan Braun 12/12/87-04/24/17

Born December 12, 1987, Meagan Rae Braun was a kind, caring, loving individual with the most beautiful, gentle soul. But behind her beautiful smile, Meagan suffered from multisystemic illnesses including EDS, hyperadrenergic Postural Orthostatic Tachycardia Syndrome (POTS), allergies and sensitivities, and more. Frustrated with limited treatment options for her health, in addition to battling postpartum depression, Meagan lost all hope resulting in her death from suicide on April 24th, 2017.

Lisa Klatkiewicz 1988 – 2019

Lisa M. Klatkiewicz, 30, of Milwaukee passed away peacefully Monday morning, February 25, 2019, at her home with her family by her side after a 4-year battle with health conditions associated with her Ehler’s Danlos Syndrome.

The daughter of David and Suzan (Smet) Klatkiewicz was born March 14, 1988, in Green Bay, WI. She attended the Seymour school district and graduated in 2006. After high school, she continued on to graduate from Martin’s College of Cosmetology and Massage in 2007 with her massage therapist license. She owned her own business for massage in Black Creek, WI until her health declined.


Made a donation in honor of your loved one.  Email photo and obituary to to have your loved one added to this page.

Our organization relies on donations from generous supporters like you! All proceeds from this area will go toward providing education to medical professionals in Wisconsin. Your dollars will directly impact individuals in our local community!

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EDS Wisconsin, Inc.
PO Box 485, Sun Prairie, WI 53590

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Together we are stronger!