If you’ve been affected by Ehlers-Danlos syndromes or a related disorder, then you know it’s crucial for everyone to know the signs, get an early diagnosis, get the right treatment, and avoid medical complications. These are the same reasons why we need to increase awareness, education, support, resources and research for patients and medical professionals!
May is EDS Awareness Month
Our goal is to raise $5,000 by May 31, 2019 to develop support and resources via education and research!
Meagan’s Walk Registration
We are now accepting registrations for our 2nd Annual Meagan’s Walk for EDS Awareness and Suicide Prevention happening on May 4, 2019! Come walk with us for a great cause. More information here.