Strengthening Connections, Inc. is a non-profit organization that operates entirely on the generosity of people of people like you.  We are not corporate or government supported or sponsored, and therefore, we must call upon those who support our mission to also aid our mission.  Together, we can reach more people and save more lives.

Strengthening Connections, Inc. operates solely on volunteers and donations.  Your cash donations are used solely to fulfill our mission of providing support, research, resources and education to patients and medical professionals throughout Wisconsin and beyond.

Sign up to receive email updates here!

Items Needed

Cash donations are the most helpful. Below is a list of items that we currently need.  To make a donation, please contact us using the form below, and we will get in touch with you as soon as time allows.  Thank you.

  • Our biggest need is printing! If you or someone you know is able to get printing donated to us, please contact Emily at [email protected]
  • Printer ink - HP 201
  • Postage
  • Brochure printing
  • Check back soon...

Contact Us

    Featured Post

    • 2018: A Dazzling Year

      Press Release April 11, 2019

      Thank you for supporting EDS Wisconsin in whatever way you can–and there are many. Your support through monetary contributions, event attendance, social media presence, supporting patients through mentorship and listening, following our blog, and even just by having an awareness of our experience with...

      read More

    Thanksgiving Thoughts

    November 24, 2023

    Advocacy: Doing the Most

    November 14, 2023

    “I’m Mild”

    November 12, 2023

    EDS Awareness: All THOSE Bruises

    May 4, 2020


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    Become a sponsor and save lives!

    Donate

    Help us to provide support and resources to Wisconsin patients and medical professionals about Ehlers-Danlos Syndromes and related conditions via education and research.

     

    Strengthening Connections, Inc. is a non-profit organization that operates entirely on the generosity of people of people like you.  We are not corporate or government supported or sponsored, and therefore, we must call upon those who support our mission to also aid our mission.  Together, we can reach more people and save more lives.

    Strengthening Connections, Inc. operates solely on volunteers and donations.  Your cash donations are used solely to fulfill our mission of providing support, research, resources and education to patients and medical professionals throughout Wisconsin and beyond.

    Sign up to receive email updates here!

    Items Needed

    Cash donations are the most helpful. Below is a list of items that we currently need.  To make a donation, please contact us using the form below, and we will get in touch with you as soon as time allows.  Thank you.

    • Our biggest need is printing! If you or someone you know is able to get printing donated to us, please contact Emily at [email protected]
    • Printer ink – HP 201
    • Postage
    • Brochure printing
    • Check back soon…

    Contact Us

      Learn More Or
      Email Us At [email protected]

      Our Volunteers

      Emily Ramthun

      Event Planner, Executive Assistant, and Patient Advocate

      Hello, my name is Emily. I am very excited to be a part of EDS Wisconsin, Inc. Within the organization I like to help connect those in need (with a specialty in Dysautonomia, young...

      Stacie MacWilliams

      IEP and 504 Plan Consultant

      Stacie will speak with families about school IEP’s and 504 Plans. She can be reached at [email protected] or 608-469-9964

      ILLINOIS

      Rachel E. Framarin, B.A.W.I.E

      President & Founder at EDS Illinois

      President and Founder of EDS Illinois, Rachel is passionate about helping patients and medical professionals affected by Ehlers Danlos syndromes (EDS) and related disorders in Illinois. She is excited to utilize her extensive non-profit...

      Sheryl Kostich

      Milwaukee Area Support Group Leader

      Contact Sheryl at [email protected]

      Dawn Dembosky

      Milwaukee Area Support Group Leader

      Contact Dawn at [email protected]

      Damon Weber

      Assistant Researcher

      Leah Narans La Fleur

      Educator and Madison Area Support Group Leader

      Contact Leah at [email protected]

      Andee Dunn

      IEP and 504 Plan Advisor

      Contact Andee at [email protected]

      Testimonials

      What people are saying about us…

      • This is so great! I really appreciate all the time you put into helping me be my best leader and a better person for myself and a support for others. People look to me for that now and it’s such a wonderful and awesome responsibility. I understand the gravity of it and take it seriously, even through my goofy sense of humor.

        Michelle Stevens
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      • EDS Wisconsin is very helpful-excellent resources, knowledgeable leaders, assistance finding EDS aware providers, excellent support groups and much more. Finding peer support is enormously beneficial. Knowing that others understand your circumstances and support you is invaluable. It is an honor to know the members and leaders of this organization. ???

        Stacey Slottey
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      • Great resource for people with EDS in the Wisconsin area!

        Crystal Lindell
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      • Any question our family has had, has always been answered. This is a judge free zone full of people who want to help one another.

        Kathy Vandersteen, .

      • Thank you all for your kindness, thoughtfulness, and time you put into helping me get a computer. I’m so incredibly grateful! The surprise Tammy, Brandy, and Tyler pulled off was one of the most amazing experiences. This literally opens up my world. I now have the opportunity to do things I could never do before and had only dreamt about.

        This community has become family and I’m honored to know all of you and be a part of your family. I’m humbled to be a part of team EDS Wisconsin. This is so big, and I can see how it helps others in the present and over time. The work we are doing through volunteering improves the quality of life by directly impacting people in ways I’ve never seen other organizations or support groups do before. Thank you. Thank you Thank you.

        Michelle Stevens.

      • Most helpful support group ever, not just the ppl although their wonderfully warm, but I’ve come away from the meetings with so much more knowledge, referrals & resources! They’ve helped me connect the dots about what’s going on with me, find specialists to help me and best of all I know that I’m not alone in this journey. Some of the ppl I’ve met at the meetings have so much in common with me that I hope we’ll be life long friends supporting each other in the struggle with this rare syndrome!

        Gracie Murbach, .

      • Being part of this team has become something unexplainable. I’m a part of something great, and it’s so much bigger than me. It is a cohesive unit. I am in awe! The help we give others goes directly to the person in the other side. It’s real real life and I love it!

        Volunteer with EDS Wisconsin.

      • incredible community and leader

        Joc Polczynski.

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      Together we are stronger!

      Become a Volunteer OrLearn about EDS