Given the current situation with Covid-19, we are changing the annual Meagans Walk event to an online talent show and performance event. We are look for individuals who want to demonstrate their talent (performance, music, art, baking, etc.) by way of video clips. NEW: We are also looking for photos and videos of anything that you did for EDS Awareness Month. We will then produce a show to show off our incredible community. We are also looking for Sponsors and speakers for the video as well.
Check back frequently for updates.
Uniting people and giving hope in memory of Meagan Braun for Suicide Awareness & Prevention, EDS Awareness, and Strengthen Connections!
STEP 1: Show off your talents! Do you or someone you know have a talent that they can show off to support EDS Awareness and Suicide Prevention? Did you do something for EDS Awareness Month that you would like to share? We would love to show off our talented community. Sign up to be a participant by clicking here!
STEP 2: Submit your talent show or awareness video. Here are the directions:
- Record your video using your phone, webcam or video recorder. Preferably, your video will be 720p resolution (or better).
- Email your video to: firstname.lastname@example.org. Please, no videos over 2GB.
- Alternatively, you can upload your video to Google Drive and share it with EDSWisconsin@gmail.com.
FOR IMMEDIATE RELEASE: 04/06/20
Meagan’s HOPE At Home: Online Talent Show
Ehlers Danlos syndromes Awareness & Suicide Prevention
Madison, WI: Strengthening EDS Connections, dba EDS Wisconsin, Inc. and the Braun Family, along with EDS organizations in Louisiana, Ohio, and Illinois, are hosting Meagan’s HOPE At Home: Online Talent Show for Ehlers Danlos syndromes (EDS) Awareness & Suicide Prevention. In previous years, over 300 people from across the country came to their “Walk & Roll” event.
Ehlers Danlos syndromes are a group of heritable connective tissue disorders that impact individuals of all ages & genders. Frequently misdiagnosed as Fibromyalgia, Chronic Fatigue Syndrome, or various psychosomatic illnesses, EDS affects nearly every body system since connective tissue is what holds the body together like glue. Many of those who have EDS experience daily pain, excessive fatigue, increased bleeding, and they have overly flexible joints which can lead to joint dislocations, as well as many other seemingly unrelated symptoms. Support and resources for medical professionals and patients affected by EDS remains limited. Sadly, EDS frequently goes undiagnosed for many years causing patients and medical professionals unnecessary suffering. Diagnosis is validating and empowering for patients, their loved ones and medical professionals. Early diagnosis enables proper treatment strategies, fewer unnecessary medical visits, and prevents injury.
Born December 12, 1987, Meagan Rae Braun was a kind, caring, loving individual with a most beautiful, gentle soul. She grew up in Medford, WI and then resided in Weston. Meagan was an outstanding mother of two young children who truly enjoyed helping others while continually seeking knowledge, truth, peace and harmony. Even so, behind her beautiful smile, Meagan suffered with multisystemic illnesses including EDS, hyperadrenergic Postural Orthostatic Tachycardia Syndrome (hyperPOTS), allergies, sensitivities, and more. Frustrated with limited treatment options for her health, in addition to battling postpartum depression, Meagan lost all hope resulting in her death from suicide on April 24th, 2017. Our annual events are held in honor of Meagan’s gracious spirit.
The mission of the not-for-profit organization Strengthening Connections is to provide support and resources to patients and medical professionals about Ehlers-Danlos syndromes and related conditions via education and research. Together with the Braun Family, EDS Wisconsin, EDS Louisiana, EDS Ohio, and EDS Illinois, this Talent Show is an opportunity to increase awareness, to strengthen connections for those affected by EDS, and to give hope to individuals who may be contemplating suicide. There will be t-shirts and other items for sale online prior to the event.
Participants can register at this link starting Tuesday April 7, 2020
Sponsorship information can be found by clicking here
Check back for the link to watch the performances.
To make a donation please visit KnowEDS.org and click on the link to Donate.
Sincerely, The Braun Family