Our Volunteers

  • Tracy Diehl

    Office Support

    I was diagnosed with Ehlers-Danlos hypermobility type in 2007. Since then, I am always in search of the best strategies to care for my EDS body--understanding that it is important to be your own...

  • Tracy Joyner

    Graphic Designer

    Tracy says "My main motivation for volunteering is to connect with others with the illness and form a sense of community. Myself and many others feel very lonely with this illness. In creating this...

  • Stephanie Ann Goettl


    Stephanie is a 27-year old EDS patient living in southern Wisconsin and while she considers that having EDS makes her a qualified blogger for the site, she thinks her strength and love of advocacy...

  • Amy Adams


    Amy earned her Paralegal Degree from Rasmussen College in Wausau, WI.  She is disabled and she is knowledgeable about disability. She says, "I volunteer because it's important to bring awareness to these diseases for...

  • Sally Jolles

    Assistant Researcher

    Sally conducts health services research focused on surgical education, patient-provider decision-making, and health disparities research. She recently completed work as a project manager on Project ADOPT, a novel surgical training program that used simulation,...

  • Christine Quackenboss

    Hello! I live in Eden, WI with my husband (Chuck) and our dog (Remy). We have three grown children and 3.33 grandchildren (who are the light of our lives!). My career is Manager-Distribution Network...

  • Mariah Liisa Holterman

    Graphic Designer

    Current city: MadisonProfession: Designer and Retail ManagerEducation: Attended the Milwaukee Institute of Art and Design, earning a BFA in Illustration.

  • Sheilah Kring

    Director of Education and Research

    Sheilah says, "It was incredibly serendipitous that prior to the onset of my disability that I had spent years working in complex health care needs, disability, advocacy, had two master’s degrees and was working...