Rachel E. Framarin, B.A.W.I.E
President and Founder of EDS Illinois, Rachel is passionate about helping patients and medical professionals affected by Ehlers Danlos syndromes (EDS) and related disorders in Illinois. She is excited to utilize her extensive non-profit...
April T. Torres, RN
President and Founder of EDS Louisiana, April is very passionate about helping persons affected by Hypermobile EDS, Dysautonomia, POTS and MCAS. She wants to do everything she can to help others feel supported. She...
Kassady Oberacker
President and Founder of EDS Ohio, Kassady Oberacker is both an EDS advocate and patient living in Cuyahoga Falls, Ohio. Her background is in Applied Conflict Management and Psychology from Kent State University and...
Emily Ramthun
Hello, my name is Emily. I am very excited to be a part of EDS Wisconsin, Inc. Within the organization I like to help connect those in need (with a specialty in Dysautonomia, young...
Tammy Price
Tammy is a holistic health coach and allergy friendly chef. She believes that soup is good food, laughter is good medicine, and a good support system and self-care is a must. She volunteers because she does...
Myra Burkhardt
Myra Burkhardt is the founder and CEO of Burkhardt Physical Therapy Center, LLC. She is excited to learn new treatment strategies that help patients who do not respond to standard physical therapy protocols.
Stacie MacWilliams
Stacie will speak with families about school IEP’s and 504 Plans. She can be reached at samteach27@gmail.com or 608-469-9964