Emily Ramthun

  • Emily Ramthun

    Event Planner, Executive Assistant, and Patient Advocate

Hello, my name is Emily. I am very excited to be a part of EDS Wisconsin, Inc. Within the organization I am an Event Planner, Executive Assistant, and Patient Advocate where I help connect those in need (with a specialty in Dysautonomia, young adults and college students).

I reside in Northcentral Wisconsin and am in senior standing at the University of Wisconsin-Superior online, where I am studying a program which encompasses nursing, kinesiology, and communication courses. I know first-hand what it is like to have Hypermobile Ehlers-Danlos, Dysautonomia, and other rare & complex medical conditions. I have also attended numerous medical/nursing conferences and earned multiple CME & CNE credits.

I enjoy listening to music, watching medical/police dramas and documentaries, doing DIY projects, hanging out with friends and family, traveling the world, and hanging out at the lake.

I look forward to helping those navigate and learn more about Ehlers-Danlos Syndrome and other comorbid conditions through helping EDS Wisconsin achieve their vision of “a better Wisconsin where EDS and related conditions are fully understood, treated and supported.”

Email Emily at emily.edswi@gmail.com

Together we are stronger!