About Us

Our mission is to provide support and resources to patients and medical professionals affected by Ehlers-Danlos syndromes (EDS) and related conditions  via education and research. 

Our Vision is a better place where EDS and related conditions are fully understood, treated and supported.

President and CEO Tammy KosbabTammy J. Kosbab, BSHM, President & Founder at EDS Wisconsin Strengthening Connections has been working with EDS Wisconsin since 2017, EDS Louisiana (2019), EDS Ohio (2019), and EDS Illinois (2020). They have created numerous in-person and online support groups. They have hosted educational events for patients and medical professionals which were attended by over 2,000 individuals. Most importantly, they have offered help, hope and healing to patients and medical professionals affected by EDS and related conditions, and their families!

We regularly work with over 100 volunteers from all over the country. Our Volunteers, Sponsors, and Donors are the true hero’s of our organization.

To get involved, email Tammy@KnowEDS.org