About Us

The Mission of EDS Wisconsin, Inc is to provide support and resources to Wisconsin patients and medical professionals affected by Ehlers-Danlos syndromes and related conditions via education and research

Our Vision is a better Wisconsin where EDS and related conditions are fully understood, treated and supported.

Since its inception in 2017, EDS Wisconsin has created 5 ongoing, in-person support groups in Wisconsin; has hosted educational events for patients and medical professionals which were attended by over 1,000 individuals; has raised over $15,000; and most importantly, has offered help, hope and healing to individuals affected by EDS and related conditions, and their families!

We regularly work with over 70 volunteers from all over the state. Our Volunteers, Sponsors, and Donors are the true hero’s of our organization.

A special thank you to Dr Linda S Bluestein, MD at Wisconsin Integrative Pain Specialists in Wausau, WIsconsin for helping to develop our organization and for the countless hours she puts in to help those affected by EDS and related conditions. Thank you Dr. Bluestein.

Dr. Linda S. Bluestein, MD of Wisconsin Integrative Pain Specialists

Wisconsin Integrative Pain Specialists Logo

Wisconsin Integrative Pain Specialists










EDS Wisconsin, Inc.

Strengthening Connections


Together we are stronger!