About Us

The Mission of EDS Wisconsin, Inc is to provide support and resources to Wisconsin patients and medical professionals affected by Ehlers-Danlos syndromes and related conditions via education and research. 

Our Vision is a better Wisconsin where EDS and related conditions are fully understood, treated and supported.

Since its inception in 2017, EDS Wisconsin has created 6 ongoing, in-person support groups in Wisconsin as well as an online support group. They have hosted educational events for patients and medical professionals which were attended by over 2,000 individuals. They have raised over $20,000. But most importantly, they have offered help, hope and healing to patients and medical professionals affected by EDS and related conditions, and their families!

We regularly work with over 100 volunteers from all over the country. Our Volunteers, Sponsors, and Donors are the true hero’s of our organization.