is an initiative started in 2019 to help medical professionals learn more about Ehlers-Danlos syndromes and related disorders, such as Mast Cell Activation, Dystonia, Autism, Dysautonomia, Gastroparesis, and others.
The phrase "Know EDS" was chosen because it is relevant, "punny," and an easy way to remember where to go to learn more.
Click on the topic below to learn more:
Do you know of any resources that should be on this page?
Click here to submit a resource to be reviewed and added to our resource library.
Our KnowEDS education initiative is in honor of Lisa's love for education, puns, and hot pink. Lisa was only 30 when she passed away in February of 2019 due to health conditions associated with EDS. Read Lisa's story here.
Request medical education to your facility by emailing Johanna.KnowEDS@gmail.com
Strengthening Connections, EDS Wisconsin, EDS Louisiana, EDS Ohio, and EDS Illinois are dedicated to increasing support and resources for medical professionals and patients. Our vision is a better place where EDS and related disorders are better understood, treated, and supported. Together we are stronger!
Do you have a provider you'd like to recommend to other patients?