#KnowEDS is a project to help medical professionals learn more about Ehlers Danlos syndromes and related conditions, such as Mast Cell Activation, Dystonia, Autism, Dysautonomia, gastroparesis, and others. Oftentimes the medical community is unsure of what to do with patients because of the lack of education provided in medical school and/or thoroughly researched treatment protocols surrounding these conditions.

#KnowEDS is a phrase that is easy to remember for patients and medical professionals alike. It is also a meaningful pun representing No EDS and Know EDS.

EDS Wisconsin will keep this page up to date with the most current education options surrounding EDS and related conditions in honor of the late Lisa Klatkiewicz, 30, who passed away on February 25, 2019 in Seymour, Wisconsin after a long battle to receive helpful care for EDS, Mast Cell Activation, Dysautonomia, Dystonia, Autism, and gastroparesis. You can read more about Lisa below.

image for #knoweds, Lisa

Thank you so much for visiting our page.

EDS Wisconsin is dedicated to increasing education and support for the medical community in Wisconsin, and eventually for people everywhere. Our vision is a better Wisconsin where EDS and related conditions are better understood, treated, and supported.

EDS Wisconsin. Strengthening Connections!

Pain Management in Hypermobility Disorders: Frequently Missed Causes of Chronic Pain – Linda Stapleford Bluestein, MD., Topics in Pain Management: July 2017 – Volume 32 – Issue 12 – p 1–10  

image for link to physicians resources page


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Lisa M. Klatkiewicz, 30, of Milwaukee passed away February 25, 2019, at her home with her family by her side after a 4-year battle with health conditions associated with Ehlers Danlos Syndrome.

The daughter of David and Suzan (Smet) Klatkiewicz. Lisa was born on March 14, 1988, in Green Bay, WI. She attended the Seymour school district and graduated in 2006. After high school, she continued on to graduate from Martin’s College of Cosmetology and Massage in 2007 with her massage therapist license. She owned her own business for massage in Black Creek, WI until her health declined. She then went on to sell insurance for American Family. After her health disabled her from a regular job, she took up a new passion of training her service dog Runt who she loved dearly. She had self-trained him to open doors, pick up her phone, opening and closing drawers. She was a woman of many talents including sewing crafts, organic gardening, crocheting, hunting, fishing and riding her bike when she was physically able to.

Lisa was a very caring, loving, and compassionate person who loved to learn and share her knowledge with anyone who would listen. She touched many people’s lives and hoped that they would pass on the kindness and knowledge to others. She had incredible strength through all of her struggles and still had a passion for life. She will be sadly missed by all who knew and loved her.

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