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Thank you for supporting EDS Wisconsin in whatever way you can–and there are many. Your support through monetary contributions, event attendance, social media presence, supporting patients through mentorship and listening, following our blog, and even just by having an awareness of our experience with...
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December 22, 2019
Help us to provide support and resources to Wisconsin patients and medical professionals about Ehlers-Danlos Syndromes and related conditions via education and research.
Cash donations are the most helpful. Below is a list of items that we currently need. To make a donation, please contact us using the form below, and we will get in touch with you as soon as time allows. Thank you.
President and Founder of EDS Illinois, Rachel is passionate about helping patients and medical professionals affected by Ehlers Danlos syndromes (EDS) and related disorders in Illinois. She is excited to utilize her extensive non-profit...
I have a personal investment in helping others who have chronic pain conditions, EDS, POTS, Mast Cell Activation Disorders, ADHD and Autism. These disorders have affected myself and/or family members and I have spent...
Contact Michelle at Michelle.edswi@gmail.com
Tsilos graduated with a Juris Doctorate degree in 2007 from UW Madison Law School. She also graduated with double majors and a Bachelors of Art degree from the University of Wisconsin-Milwaukee in 2003. Tsilos...
What people are saying about us…
Any question our family has had, has always been answered. This is a judge free zone full of people who want to help one another.
Kathy Vandersteen, .
This is so great! I really appreciate all the time you put into helping me be my best leader and a better person for myself and a support for others. People look to me for that now and it’s such a wonderful and awesome responsibility. I understand the gravity of it and take it seriously, even through my goofy sense of humor.
Michelle Stevens.
Great resource for people with EDS in the Wisconsin area!
Crystal Lindell.
Most helpful support group ever, not just the ppl although their wonderfully warm, but I’ve come away from the meetings with so much more knowledge, referrals & resources! They’ve helped me connect the dots about what’s going on with me, find specialists to help me and best of all I know that I’m not alone in this journey. Some of the ppl I’ve met at the meetings have so much in common with me that I hope we’ll be life long friends supporting each other in the struggle with this rare syndrome!
Gracie Murbach, .
I wanted to tell you from the video you shared with myself and others about mast cells I could understand it from how you did your presentation. I have in the past read articles cut I came away more confused. But how you explained it made it easy to understand. I am looking forward to seeing more videos from you! You have a special way of explaining these difficult subjects & you’re helping so many of us with your knowledge <3
Sally Orlowski, .
Excellent resource for support and information about EDS.
Lynn Burgess, .
Tammy Kosbab is a dedicated individual who has seeded and grown this organization at an incredible rate in it’s first year and continues to keep the pace. The amount of information, resources, people and live interaction to support and educate those affected with or by EDS and related illnesses and syndromes is extraordinary. Her ability to network and build this first rate educational non-profit is admirable. EDS Wisconsin, Inc. is bound to be a world class organization.
Deb Klecker, .
Being part of this team has become something unexplainable. I’m a part of something great, and it’s so much bigger than me. It is a cohesive unit. I am in awe! The help we give others goes directly to the person in the other side. It’s real real life and I love it!
Volunteer with EDS Wisconsin.
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