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Thank you for supporting EDS Wisconsin in whatever way you can–and there are many. Your support through monetary contributions, event attendance, social media presence, supporting patients through mentorship and listening, following our blog, and even just by having an awareness of our experience with...
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December 22, 2019
Help us to provide support and resources to Wisconsin patients and medical professionals about Ehlers-Danlos Syndromes and related conditions via education and research.
Cash donations are the most helpful. Below is a list of items that we currently need. To make a donation, please contact us using the form below, and we will get in touch with you as soon as time allows. Thank you.
I have a personal investment in helping others who have chronic pain conditions, EDS, POTS, Mast Cell Activation Disorders, ADHD and Autism. These disorders have affected myself and/or family members and I have spent...
President and Founder of EDS Illinois, Rachel is passionate about helping patients and medical professionals affected by Ehlers Danlos syndromes (EDS) and related disorders in Illinois. She is excited to utilize her extensive non-profit...
Current city: Madison Profession: Designer and Retail Manager Education: Attended the Milwaukee Institute of Art and Design, earning a BFA in Illustration.
Contact Leah at Leah.EDSWi@gmail.com
President and Founder of EDS Louisiana, April is very passionate about helping persons affected by Hypermobile EDS, Dysautonomia, POTS and MCAS. She wants to do everything she can to help others feel supported. She...
Stephanie is a 27-year old EDS patient living in southern Wisconsin and while she considers that having EDS makes her a qualified blogger for the site, she thinks her strength and love of advocacy...
What people are saying about us…
Excellent resource for support and information about EDS.
Lynn Burgess, .
Being part of this team has become something unexplainable. I’m a part of something great, and it’s so much bigger than me. It is a cohesive unit. I am in awe! The help we give others goes directly to the person in the other side. It’s real real life and I love it!
Volunteer with EDS Wisconsin.
Any question our family has had, has always been answered. This is a judge free zone full of people who want to help one another.
Kathy Vandersteen, .
EDS Wisconsin is very helpful-excellent resources, knowledgeable leaders, assistance finding EDS aware providers, excellent support groups and much more. Finding peer support is enormously beneficial. Knowing that others understand your circumstances and support you is invaluable. It is an honor to know the members and leaders of this organization. ???
Stacey Slottey.
Great resource for people with EDS in the Wisconsin area!
Crystal Lindell.
Most helpful support group ever, not just the ppl although their wonderfully warm, but I’ve come away from the meetings with so much more knowledge, referrals & resources! They’ve helped me connect the dots about what’s going on with me, find specialists to help me and best of all I know that I’m not alone in this journey. Some of the ppl I’ve met at the meetings have so much in common with me that I hope we’ll be life long friends supporting each other in the struggle with this rare syndrome!
Gracie Murbach, .
This is so great! I really appreciate all the time you put into helping me be my best leader and a better person for myself and a support for others. People look to me for that now and it’s such a wonderful and awesome responsibility. I understand the gravity of it and take it seriously, even through my goofy sense of humor.
Michelle Stevens.
Tammy Kosbab, co-founder of EDS Wisconsin, Inc., is extremely passionate about serving patients with Ehlers-Danlos syndromes and related disorders. Driven to improve the lives of patients in Wisconsin, Tammy works tirelessly and with great compassion. As a physician, I greatly appreciate Tammy’s organizational and communication skills as well as her dedication to bridging the gap between patients and healthcare providers. I have found Tammy to be reliable, caring and enthusiastic. It has been a true pleasure working with Tammy Kosbab and EDS Wisconsin Inc.
Dr Linda S. Bluestein, MD.
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