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Thank you for supporting EDS Wisconsin in whatever way you can–and there are many. Your support through monetary contributions, event attendance, social media presence, supporting patients through mentorship and listening, following our blog, and even just by having an awareness of our experience with...
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December 22, 2019
Help us to provide support and resources to Wisconsin patients and medical professionals about Ehlers-Danlos Syndromes and related conditions via education and research.
Cash donations are the most helpful. Below is a list of items that we currently need. To make a donation, please contact us using the form below, and we will get in touch with you as soon as time allows. Thank you.
Contact Kate at kate.edswi@gmail.com
“K-C” strongly believes in the healing and therapeutic benefits of alternative approaches to therapy. As an art therapist she strives to adapt to the specific needs of her clients. She works from a person-centered...
Hello, my name is Emily. I am very excited to be a part of EDS Wisconsin, Inc. Within the organization I am an Event Planner, Executive Assistant, and Patient Advocate where I help connect...
President and Founder of EDS Louisiana, April is very passionate about helping persons affected by Hypermobile EDS, Dysautonomia, POTS and MCAS. She wants to do everything she can to help others feel supported. She...
Reach Johanna at Johanna.KnowEDS@gmail.com
What people are saying about us…
Great resource for people with EDS in the Wisconsin area!
Crystal Lindell
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Most helpful support group ever, not just the ppl although their wonderfully warm, but I’ve come away from the meetings with so much more knowledge, referrals & resources! They’ve helped me connect the dots about what’s going on with me, find specialists to help me and best of all I know that I’m not alone in this journey. Some of the ppl I’ve met at the meetings have so much in common with me that I hope we’ll be life long friends supporting each other in the struggle with this rare syndrome!
Gracie Murbach, .
Thank you all for your kindness, thoughtfulness, and time you put into helping me get a computer. I’m so incredibly grateful! The surprise Tammy, Brandy, and Tyler pulled off was one of the most amazing experiences. This literally opens up my world. I now have the opportunity to do things I could never do before and had only dreamt about.
This community has become family and I’m honored to know all of you and be a part of your family. I’m humbled to be a part of team EDS Wisconsin. This is so big, and I can see how it helps others in the present and over time. The work we are doing through volunteering improves the quality of life by directly impacting people in ways I’ve never seen other organizations or support groups do before. Thank you. Thank you Thank you.
Michelle Stevens.
Tammy Kosbab is a dedicated individual who has seeded and grown this organization at an incredible rate in it’s first year and continues to keep the pace. The amount of information, resources, people and live interaction to support and educate those affected with or by EDS and related illnesses and syndromes is extraordinary. Her ability to network and build this first rate educational non-profit is admirable. EDS Wisconsin, Inc. is bound to be a world class organization.
Deb Klecker, .
This is so great! I really appreciate all the time you put into helping me be my best leader and a better person for myself and a support for others. People look to me for that now and it’s such a wonderful and awesome responsibility. I understand the gravity of it and take it seriously, even through my goofy sense of humor.
Michelle Stevens.
incredible community and leader
Joc Polczynski.
Excellent resource for support and information about EDS.
Lynn Burgess, .
Being part of this team has become something unexplainable. I’m a part of something great, and it’s so much bigger than me. It is a cohesive unit. I am in awe! The help we give others goes directly to the person in the other side. It’s real real life and I love it!
Volunteer with EDS Wisconsin.
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