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Thank you for supporting EDS Wisconsin in whatever way you can–and there are many. Your support through monetary contributions, event attendance, social media presence, supporting patients through mentorship and listening, following our blog, and even just by having an awareness of our experience with...
read MoreNovember 24, 2023
November 14, 2023
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May 4, 2020
Help us to provide support and resources to Wisconsin patients and medical professionals about Ehlers-Danlos Syndromes and related conditions via education and research.
Cash donations are the most helpful. Below is a list of items that we currently need. To make a donation, please contact us using the form below, and we will get in touch with you as soon as time allows. Thank you.
Stacie will speak with families about school IEP’s and 504 Plans. She can be reached at samteach27@gmail.com or 608-469-9964
President and Founder of EDS Illinois, Rachel is passionate about helping patients and medical professionals affected by Ehlers Danlos syndromes (EDS) and related disorders in Illinois. She is excited to utilize her extensive non-profit...
Tsilos graduated with a Juris Doctorate degree in 2007 from UW Madison Law School. She also graduated with double majors and a Bachelors of Art degree from the University of Wisconsin-Milwaukee in 2003. Tsilos...
President and Founder of EDS Louisiana, April is very passionate about helping persons affected by Hypermobile EDS, Dysautonomia, POTS and MCAS. She wants to do everything she can to help others feel supported. She...
I was diagnosed with Ehlers-Danlos hypermobility type in 2007. Since then, I am always in search of the best strategies to care for my EDS body--understanding that it is important to be your own...
President and Founder of EDS Ohio, Kassady Oberacker is both an EDS advocate and patient living in Cuyahoga Falls, Ohio. Her background is in Applied Conflict Management and Psychology from Kent State University and...
Steve is a successful entrepreneur: Fishing Hot Spots, Inc., Fishidy, EDS Wisconsin, and others. He has served on numerous Boards and Committees in business and educational settings. He is a family oriented person who...
What people are saying about us…
Thank you all for your kindness, thoughtfulness, and time you put into helping me get a computer. I’m so incredibly grateful! The surprise Tammy, Brandy, and Tyler pulled off was one of the most amazing experiences. This literally opens up my world. I now have the opportunity to do things I could never do before and had only dreamt about.
This community has become family and I’m honored to know all of you and be a part of your family. I’m humbled to be a part of team EDS Wisconsin. This is so big, and I can see how it helps others in the present and over time. The work we are doing through volunteering improves the quality of life by directly impacting people in ways I’ve never seen other organizations or support groups do before. Thank you. Thank you Thank you.
Michelle Stevens
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Most helpful support group ever, not just the ppl although their wonderfully warm, but I’ve come away from the meetings with so much more knowledge, referrals & resources! They’ve helped me connect the dots about what’s going on with me, find specialists to help me and best of all I know that I’m not alone in this journey. Some of the ppl I’ve met at the meetings have so much in common with me that I hope we’ll be life long friends supporting each other in the struggle with this rare syndrome!
Gracie Murbach, .
incredible community and leader
Joc Polczynski.
EDS Wisconsin is very helpful-excellent resources, knowledgeable leaders, assistance finding EDS aware providers, excellent support groups and much more. Finding peer support is enormously beneficial. Knowing that others understand your circumstances and support you is invaluable. It is an honor to know the members and leaders of this organization. ???
Stacey Slottey.
Any question our family has had, has always been answered. This is a judge free zone full of people who want to help one another.
Kathy Vandersteen, .
Excellent resource for support and information about EDS.
Lynn Burgess, .
This is so great! I really appreciate all the time you put into helping me be my best leader and a better person for myself and a support for others. People look to me for that now and it’s such a wonderful and awesome responsibility. I understand the gravity of it and take it seriously, even through my goofy sense of humor.
Michelle Stevens.
I wanted to tell you from the video you shared with myself and others about mast cells I could understand it from how you did your presentation. I have in the past read articles cut I came away more confused. But how you explained it made it easy to understand. I am looking forward to seeing more videos from you! You have a special way of explaining these difficult subjects & you’re helping so many of us with your knowledge <3
Sally Orlowski, .
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