2nd Annual Meagan’s HOPE Memorial Walk & Roll for EDS Awareness and Suicide Prevention 2019 ***OFFICIAL PAGE***

  • May 4, 2019 at 1:00 pm
  • Open
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Born December 12, 1987, Meagan Rae Braun was a kind, caring, loving individual with the most beautiful, gentle soul. But behind her beautiful smile, Meagan suffered with multisystemic illnesses including EDS, hyperadrenergic Postural Orthostatic Tachycardia Syndrome (POTS), allergies and sensitivities, and more. Frustrated with limited treatment options for her health, in addition to battling postpartum depression, Meagan lost all hope resulting in her death from suicide on April 24th, 2017.

The Walk is being held in honor of Meagan’s gracious spirit to raise money and awareness surrounding EDS and related disorders. Funds are used to develop support and resources for patients and medical professionals.

Tragedies like this are preventable with education, support and resources! This is why we MUST enhance education, support and resources for both the medical community and the patient population as soon as possible! One person, like Meagan, is too many!

Event day check-in and t-shirt pick up begins at 11:30am at Kennedy Park in Weston, Wisconsin, There will be speakers at 1 Pm, and the Walk & Roll will begin afterwards.

Participants are NOT required to do the walk and we encourage anyone who is able to come to show their support and raise awareness!  There will be bottled water available, and Gatorade and snacks available for sale. 

If you are able to donate to the Craft & Bake Sale, please contact Jolaine Braun at 715-678-6014 ot 715-965-2725.

To Volunteer, Sponsor, or to find out other ways that you can help, please contact Angela at 715-370-1736, or Tammy at EDSWisconsin@gmail.com

Registration for Meagan’s HOPE Memorial Walk for EDS Awareness and Suicide Prevention 2019 is now open!

***To be guaranteed a shirt, participants must register by Wednesday April 17th.***

Registrations Instructions:

  • Volunteers note “volunteer” in the message area
  • To register more than one adult in the same household, include full first and last name(s) with (male) t-shirt size(s) in the message area
  • To register children under the age of 18, note first name(s) and (male) t-shirt size(s) in the message area
  • If you have any questions, please write them in the message area and we will address them and email you back as soon as we are able. Thank you.

*All t-shirts come in male sizes only. Youth and Adult.

Suggested Donation: $15 / Registrant

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We are looking forward to seeing everyone and strengthening connections.

Additional details will be posted as details are finalized.

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