Support Groups

Group Meeting

Each state is working on dividing their state into smaller, more manageable regions. These regions are:

  • South Central Wisconsin
  • South Eastern Wisconsin
  • North Central Wisconsin
  • North Eastern Wisconsin
  • North Western Wisconsin
  • Shreveport Area Louisiana
  • Baton Rouge Area Louisiana
  • Lafayette Area Louisiana
  • Covington Area Louisiana
  • Monroe Area Louisiana
  • Cuyahoga Falls Area Ohio
  • Others are coming soon!

We have Online Support Group Meetings. Please visit our Facebook Page for more details.

Currently, our organization has OVER THIRTY support group leaders in FOUR different STATES!

Call for Leaders and Co-Leaders

We are still looking for new and existing Support Group and Leaders for every region of the country. We work with our leaders so that they are fully supported and have resources to lead the groups!

If you're interested in helping to further the Mission of Strengthening Connections, apply here!

North Central Wisconsin Area Support Group

Entire families are welcome to attend!  The Support Group's is focused on getting to know each other and developing/sharing resources with one another. We hope to see you there! 

Contact: Misty at Misty.EDSWi@gmail.com

Upcoming Meetings

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South Eastern Wisconsin Area Support Group

We would love to hear from you. Please RSVP to the event on our EDS Wisconsin Facebook Page or by calling or emailing Katy at Katy.EDSWi@gmail.com, or Sheryl at Sheryl.EDSWi@gmail.com

Contact: 

Upcoming Meetings

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South Central Wisconsin Area Support Group

Entire families are welcome to attend!  The Support Group's is focused on getting to know each other and developing/sharing resources with one another. We also have breakaway sessions for children and teens. We hope to see you there!

Contact: Leah at Leah.EDSWi@gmail.com, Johanna at Johann.EDSWi@gmail.com, or Tammy at EDSWisconsin@gmail.com

Eau Claire Area Support Group

Contact: Jill  at Jill.EDSWi@gmail.com or Marie at Marie.EDSWi@gmail.com

Online Support Group Meetings

Contact: Michelle Stevens at Michelle.EDSWi@gmail.com, or Katy at Katy.EDSWi@gmail.com

 

CLICK HERE TO ACCESS OUR ONLINE SUPPORT GROUP FEEDBACK FORM

2 Comments

  1. littlezebra41 / January 19, 2020

    Hello. It has taken me a lot to build the courage to say this, but I am trying to find support. I am not yet diagnosed but I meet all the criteria. I am seventeen and have been living in chronic pain my whole life. Many of my family members also meet criteria. For the longest time no one has had any answers. I have been back and forth to doctors my whole life but they always seem puzzled. I have been to children’s three times after having torn my acl twice and my surgeon being puzzled by my low bone density. I am at the point where I live with the pain and am still trying to recover from the second acl reconstruction which was almost two years ago now. My knee slides in and out of place and frankly it is more painful than it sounds. My surgeon and athletic trainer have been helpful but honestly no one knows how to help anymore. They said I have arthritis, hamstring tendinitis, and a moderate patella-femoral tracking issue. I am hoping someone will read this and be able to help. I just am hungry for answers. I live in the fox valley area. Hope I am not a bother to y’all. XOXO

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