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Our Volunteers
Rachel E. Framarin, B.A.W.I.E
President & Founder at EDS Illinois
President and Founder of EDS Illinois, Rachel is passionate about helping patients and medical professionals affected by Ehlers Danlos syndromes (EDS) and related disorders in Illinois. She is excited to utilize her extensive non-profit...
April T. Torres, RN
President at EDS Louisiana, Inc.
President and Founder of EDS Louisiana, April is very passionate about helping persons affected by Hypermobile EDS, Dysautonomia, POTS and MCAS. She wants to do everything she can to help others feel supported. She...
Kassady Oberacker
President & Founder at EDS Ohio
President and Founder of EDS Ohio, Kassady Oberacker is both an EDS advocate and patient living in Cuyahoga Falls, Ohio. Her background is in Applied Conflict Management and Psychology from Kent State University and...
Emily Ramthun
Event Planner, Executive Assistant, and Patient Advocate
Hello, my name is Emily. I am very excited to be a part of EDS Wisconsin, Inc. Within the organization I like to help connect those in need (with a specialty in Dysautonomia, young...
Tammy Price
La Crosse Area Support
Tammy is a holistic health coach and allergy friendly chef. She believes that soup is good food, laughter is good medicine, and a good support system and self-care is a must. She volunteers because she does...
Myra Burkhardt
La Crosse Area Support
Myra Burkhardt is the founder and CEO of Burkhardt Physical Therapy Center, LLC. She is excited to learn new treatment strategies that help patients who do not respond to standard physical therapy protocols.
Stacie MacWilliams
IEP and 504 Plan Consultant
Stacie will speak with families about school IEP’s and 504 Plans. She can be reached at samteach27@gmail.com or 608-469-9964
Kc Graveen
EDS Knowledgeable Licensed Professional Counselor IT
“K-C” strongly believes in the healing and therapeutic benefits of alternative approaches to therapy. As an art therapist she strives to adapt to the specific needs of her clients. She works from a person-centered...
Leah Narans La Fleur
Educator and Madison Area Support Group Leader
Contact Leah at Leah.EDSWi@gmail.com
Michelle Stevens
La Crosse & Online Support Group Leader
Contact Michelle at Michelle.edswi@gmail.com
Kate Schultz
Senior Executive Assistant, Website Manager, and Educator
Contact Kate at kate.edswi@gmail.com
Johanna Young
Madison Area Support Group Leader & Event Planner
Reach Johanna at Johanna.KnowEDS@gmail.com
Tracy Diehl
Social Media and Awareness
I was diagnosed with Ehlers-Danlos hypermobility type in 2007. Since then, I am always in search of the best strategies to care for my EDS body--understanding that it is important to be your own...
Stephanie Goettl Vander Pas
Spokesperson, Blogger & Advocate
Stephanie is a 27-year old EDS patient living in southern Wisconsin and while she considers that having EDS makes her a qualified blogger for the site, she thinks her strength and love of advocacy...
Christine Quackenboss
North Eastern Wisconsin Support
Hello! I live in Eden, WI with my husband (Chuck) and our dog (Remy). We have three grown children and 3.33 grandchildren (who are the light of our lives!). My career is Manager-Distribution Network...
Mariah Liisa Holterman
Graphic Designer
Current city: Madison Profession: Designer and Retail Manager Education: Attended the Milwaukee Institute of Art and Design, earning a BFA in Illustration.
Tsilos Schoener
Board Member and Webmaster
Tsilos graduated with a Juris Doctorate degree in 2007 from UW Madison Law School. She also graduated with double majors and a Bachelors of Art degree from the University of Wisconsin-Milwaukee in 2003. Tsilos...