Our Volunteers

  • Emily Ramthun

    Event Planner, Executive Assistant, and Patient Advocate

    Hello, my name is Emily. I am very excited to be a part of EDS Wisconsin, Inc. Within the organization I am an Event Planner, Executive Assistant, and Patient Advocate where I help connect...

  • Tammy Price

    La Crosse Area Support

    Tammy is a holistic health coach and allergy friendly chef. She believes that soup is good food, laughter is good medicine, and a good support system and self-care is a must. She volunteers because she does...

  • Delaney Olsen

    EDS Awareness and Ambassador

    Contact Delaney at dolsen@edswi.org

  • Perrin Lacopino

    La Crosse Area Support Group Assistant

    Greetings and salutations! My name is Perrin and I am excited to be a part of this incredible team. My role as Patient Advocate is to make sure your treatment is running as smoothly...

  • Myra Burkhardt

    La Crosse Area Support Group Leader

    Hello, my name is Myra and I am a physical therapist. I am the founder and CEO of Burkhardt Physical Therapy Center, LLC which was established in April 2001 with the help and encouragement...

  • Stacie MacWilliams

    IEP and 504 Plan Consultant

    Stacie will speak with families about school IEP’s and 504 Plans. She can be reached at samteach27@gmail.com or 608-469-9964

  • Beth Wroblewski

    Kids & Teens Groups

  • Pam Sullivan

    Madison Support

  • Nikki Weber

    Milwaukee Support

  • Kristi Bleeke

    Nonprofit Professional Consultant

  • Kc Graveen

    EDS Knowledgeable Licensed Professional Counselor IT

    “K-C” strongly believes in the healing and therapeutic benefits of alternative approaches to therapy. As an art therapist she strives to adapt to the specific needs of her clients. She works from a person-centered...

  • Jennifer Erdman

    Northeastern Wisconsin Support

  • Andrea Robinson

    Promotions Consultant

  • Tom Young

    Madison Area Support Group Leader

  • Damon Weber

    Assistant Researcher

  • Dawn Dembosky

    Milwaukee Area Support Group Leader

    Contact Dawn at DawnDembosky@gmail.com

  • Andee Dunn

    Wausau Area Support Group Leader

    Contact Andee at Andee.EDSWi@gmail.com

  • Denise Gunby

    Milwaukee Area Support Group Leader

    Contact Denise at dgunby.EDSWi@gmail.com

  • Brandy Madison

    La Crosse Support Group Leader, Web Design, and Events Coordinator

    I’m a Christian mom of 3 outstanding young men and a grandma to 2 beautiful grandchildren. As I grew up, I always knew something was wrong with my body. I eventually got sick of...

  • Joc Polczynski

    Musician and Ambassador

    Contact Joc at Joc.EDSWi@gmail.com

  • Leah Narans La Fleur

    Educator and Madison Area Support Group Leader

    Contact Leah at Leah.EDSWi@gmail.com

  • Mary Brown

    Madison Area Support Group Leader

  • Christine Feldschneider

    Autism and EDS Resource Consultant, Family Support

  • Catherine Barrance

    Strategic Consultant

    Contact Catherine at cbarrance@gmail.com

  • Michelle Stevens

    La Crosse & Online Support Group Leader

    Contact Michelle at Michelle.edswi@gmail.com

  • Shelly Van De Weerd

    Wausau Area Support Group Leader

    Contact Shelly at shelly.edswi@gmail.com

  • Sheryl Kostich

    Milwaukee Area Support Group Leader

    Contact Sheryl at sheryl.edswi@gmail.com

  • Kate Schultz

    Senior Executive Assistant, Website Manager, and Educator

    Contact Kate at kate.edswi@gmail.com

  • Johanna Young

    Madison Area Support Group Leader & Event Planner

    Reach Johanna at johannayoung@gmail.com

  • Tracy Diehl

    Social Media and Awareness

    I was diagnosed with Ehlers-Danlos hypermobility type in 2007. Since then, I am always in search of the best strategies to care for my EDS body--understanding that it is important to be your own...

  • Stephanie Goettl Vander Pas

    Spokesperson, Blogger & Advocate

    Stephanie is a 27-year old EDS patient living in southern Wisconsin and while she considers that having EDS makes her a qualified blogger for the site, she thinks her strength and love of advocacy...

  • Amy Adams


    Amy earned her Paralegal Degree from Rasmussen College in Wausau, WI.  She is disabled and she is knowledgeable about disability. She says, "I volunteer because it's important to bring awareness to these diseases for...

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Together we are stronger!