Our Volunteers

Emily Ramthun

Event Planner, Executive Assistant, and Patient Advocate

Hello, my name is Emily. I am very excited to be a part of EDS Wisconsin, Inc. Within the organization I am an Event Planner, Executive Assistant, and Patient Advocate where I help connect...

Tammy Price

La Crosse Area Support

Tammy is a holistic health coach and allergy friendly chef. She believes that soup is good food, laughter is good medicine, and a good support system and self-care is a must. She volunteers because she does...

Delaney Olsen

EDS Awareness and Ambassador

Contact Delaney at dolsen@edswi.org

Perrin Lacopino

La Crosse Area Support Group Assistant

Greetings and salutations! My name is Perrin and I am excited to be a part of this incredible team. My role as Patient Advocate is to make sure your treatment is running as smoothly...

Myra Burkhardt

La Crosse Area Support Group Leader

Hello, my name is Myra and I am a physical therapist. I am the founder and CEO of Burkhardt Physical Therapy Center, LLC which was established in April 2001 with the help and encouragement...

Stacie MacWilliams

IEP and 504 Plan Consultant

Stacie will speak with families about school IEP’s and 504 Plans. She can be reached at samteach27@gmail.com or 608-469-9964

Beth Wroblewski

Kids & Teens Groups

Pam Sullivan

Madison Support

Nikki Weber

Milwaukee Support

Kristi Bleeke

Nonprofit Professional Consultant

Kc Graveen

EDS Knowledgeable Licensed Professional Counselor IT

“K-C” strongly believes in the healing and therapeutic benefits of alternative approaches to therapy. As an art therapist she strives to adapt to the specific needs of her clients. She works from a person-centered...

Jennifer Erdman

Northeastern Wisconsin Support

Andrea Robinson

Promotions Consultant

Tom Young

Madison Area Support Group Leader

Damon Weber

Assistant Researcher

Dawn Dembosky

Milwaukee Area Support Group Leader

Contact Dawn at DawnDembosky@gmail.com

Andee Dunn

Wausau Area Support Group Leader

Contact Andee at Andee.EDSWi@gmail.com

Denise Gunby

Milwaukee Area Support Group Leader

Contact Denise at dgunby.EDSWi@gmail.com

Brandy Madison

La Crosse Support Group Leader, Web & Graphic Design, and Volunteer Training Manager

I’m a Christian mom of 3 outstanding young men and a grandma to 2 beautiful grandchildren. As I grew up, I always knew something was wrong with my body. I eventually got sick of...

Joc Polczynski

Musician and Ambassador

Contact Joc at Joc.EDSWi@gmail.com

Leah Narans La Fleur

Educator and Madison Area Support Group Leader

Contact Leah at Leah.EDSWi@gmail.com

Mary Brown

Madison Area Support Group Leader

Christine Feldschneider

Autism and EDS Resource Consultant, Family Support

Catherine Barrance

Strategic Consultant

Contact Catherine at cbarrance@gmail.com

Michelle Stevens

La Crosse & Online Support Group Leader

Contact Michelle at Michelle.edswi@gmail.com

Shelly Van De Weerd

Wausau Area Support Group Leader

Contact Shelly at shelly.edswi@gmail.com

Sheryl Kostich

Milwaukee Area Support Group Leader

Contact Sheryl at sheryl.edswi@gmail.com

Kate Schultz

Senior Executive Assistant, Website Manager, and Educator

Contact Kate at kate.edswi@gmail.com

Johanna Young

Madison Area Support Group Leader & Event Planner

Reach Johanna at johannayoung@gmail.com

Tracy Diehl

Social Media and Awareness

I was diagnosed with Ehlers-Danlos hypermobility type in 2007. Since then, I am always in search of the best strategies to care for my EDS body--understanding that it is important to be your own...

Stephanie Goettl Vander Pas

Spokesperson, Blogger & Advocate

Stephanie is a 27-year old EDS patient living in southern Wisconsin and while she considers that having EDS makes her a qualified blogger for the site, she thinks her strength and love of advocacy...

Amy Adams


Amy earned her Paralegal Degree from Rasmussen College in Wausau, WI.  She is disabled and she is knowledgeable about disability. She says, "I volunteer because it's important to bring awareness to these diseases for...

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Together we are stronger!