Our Volunteers
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Emily Ramthun
Event Planner, Executive Assistant, and Patient AdvocateHello, my name is Emily. I am very excited to be a part of EDS Wisconsin, Inc. Within the organization I am an Event Planner, Executive Assistant, and Patient Advocate where I help connect...
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Tammy Price
La Crosse Area SupportTammy is a holistic health coach and allergy friendly chef. She believes that soup is good food, laughter is good medicine, and a good support system and self-care is a must. She volunteers because she does...
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Perrin Lacopino
La Crosse Area Support Group AssistantGreetings and salutations! My name is Perrin and I am excited to be a part of this incredible team. My role as Patient Advocate is to make sure your treatment is running as smoothly...
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Myra Burkhardt
La Crosse Area Support Group LeaderHello, my name is Myra and I am a physical therapist. I am the founder and CEO of Burkhardt Physical Therapy Center, LLC which was established in April 2001 with the help and encouragement...
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Stacie MacWilliams
IEP and 504 Plan ConsultantStacie will speak with families about school IEP’s and 504 Plans. She can be reached at samteach27@gmail.com or 608-469-9964
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Kc Graveen
EDS Knowledgeable Licensed Professional Counselor IT“K-C” strongly believes in the healing and therapeutic benefits of alternative approaches to therapy. As an art therapist she strives to adapt to the specific needs of her clients. She works from a person-centered...
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Brandy Madison
La Crosse Support Group Leader, Web Design, and Events CoordinatorI’m a Christian mom of 3 outstanding young men and a grandma to 2 beautiful grandchildren. As I grew up, I always knew something was wrong with my body. I eventually got sick of...
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Leah Narans La Fleur
Educator and Madison Area Support Group LeaderContact Leah at Leah.EDSWi@gmail.com
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Michelle Stevens
La Crosse & Online Support Group LeaderContact Michelle at Michelle.edswi@gmail.com
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Kate Schultz
Senior Executive Assistant, Website Manager, and EducatorContact Kate at kate.edswi@gmail.com
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Johanna Young
Madison Area Support Group Leader & Event PlannerReach Johanna at johannayoung@gmail.com
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Tracy Diehl
Social Media and AwarenessI was diagnosed with Ehlers-Danlos hypermobility type in 2007. Since then, I am always in search of the best strategies to care for my EDS body--understanding that it is important to be your own...
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Stephanie Goettl Vander Pas
Spokesperson, Blogger & AdvocateStephanie is a 27-year old EDS patient living in southern Wisconsin and while she considers that having EDS makes her a qualified blogger for the site, she thinks her strength and love of advocacy...
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Amy Adams
ParalegalAmy earned her Paralegal Degree from Rasmussen College in Wausau, WI. She is disabled and she is knowledgeable about disability. She says, "I volunteer because it's important to bring awareness to these diseases for...
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