Our Volunteers

  • Tracy Diehl

    Office Support

    I was diagnosed with Ehlers-Danlos hypermobility type in 2007. Since then, I am always in search of the best strategies to care for my EDS body--understanding that it is important to be your own...

  • Tracy Joyner

    Graphic Designer

    Tracy says "My main motivation for volunteering is to connect with others with the illness and form a sense of community. Myself and many others feel very lonely with this illness. In creating this...

  • Stephanie Ann Goettl

    Blogger/Advocate

    Stephanie is a 27-year old EDS patient living in southern Wisconsin and while she considers that having EDS makes her a qualified blogger for the site, she thinks her strength and love of advocacy...

  • Amy Adams

    Paralegal

    Amy earned her Paralegal Degree from Rasmussen College in Wausau, WI.  She is disabled and she is knowledgeable about disability. She says, "I volunteer because it's important to bring awareness to these diseases for...

  • Sally Jolles

    Assistant Researcher

    Sally conducts health services research focused on surgical education, patient-provider decision-making, and health disparities research. She recently completed work as a project manager on Project ADOPT, a novel surgical training program that used simulation,...

  • Christine Quackenboss

    Hello! I live in Eden, WI with my husband (Chuck) and our dog (Remy). We have three grown children and 3.33 grandchildren (who are the light of our lives!). My career is Manager-Distribution Network...

  • Mariah Liisa Holterman

    Graphic Designer

    Current city: MadisonProfession: Designer and Retail ManagerEducation: Attended the Milwaukee Institute of Art and Design, earning a BFA in Illustration.

  • Sheilah Kring

    Director of Education and Research

    Sheilah says, "It was incredibly serendipitous that prior to the onset of my disability that I had spent years working in complex health care needs, disability, advocacy, had two master’s degrees and was working...

  • Tsilos Schoener

    Secretary/Webmaster

    Tsilos graduated with a Juris Doctorate degree in 2007 from UW Madison Law School. She also graduated with double majors and a Bachelors of Art degree from the University of Wisconsin-Milwaukee in 2003. Tsilos...

  • Steve Swierczynski

    Vice-President/Co-Founder

    Steve is a successful entrepreneur: Fishing Hot Spots, Inc., Fishidy, EDS Wisconsin, and others. He has served on numerous Boards and Committees in business and educational settings. He is a family oriented person who...

  • Tammy Kosbab

    President/Co-Founder

    Tammy is passionate about helping those with EDS and related disorders since watching her mother suffer and then pass away in 2004 without ever knowing the cause of her ailments. In 2009, Tammy was...

  • Diane Durante MEPD, OTR, LMT, CST I

    Massage Therapist

    I have a personal investment in helping others who have chronic pain conditions, EDS, POTS, Mast Cell Activation Disorders, ADHD and Autism. These disorders have affected myself and/or family members and I have spent...

  • Dr. Linda Stapleford Bluestein

    Pain Management Physician, Anesthesiologist, Volunteer

    Linda Stapleford Bluestein, M.D. is a Volunteer who works closely with EDS Wisconsin, Inc.  She is a Mayo Clinic trained Physician Anesthesiologist with a special interest in chronic pain conditions, especially among dancers.

  • Dr Kris Ferguson

    Pain Management Physician / Anesthesiologist

    Dr. Kris Ferguson is an established and highly skilled physician with over 12 years of experience in pain management, with a special expertise in treating Ehlers-Danlos Syndromes (EDS), Hypermobility Spectrum Disorders (HSD), and related conditions.

CHANGE THEIR WORLD. CHANGE YOURS. THIS CHANGES EVERYTHING.