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Our Volunteers | Strengthening EDS Connections!

Our Volunteers

Rachel E. Framarin, B.A.W.I.E

President & Founder at EDS Illinois

President and Founder of EDS Illinois, Rachel is passionate about helping patients and medical professionals affected by Ehlers Danlos syndromes (EDS) and related disorders in Illinois. She is excited to utilize her extensive non-profit...

April T. Torres, RN

President at EDS Louisiana, Inc.

President and Founder of EDS Louisiana, April is very passionate about helping persons affected by Hypermobile EDS, Dysautonomia, POTS and MCAS. She wants to do everything she can to help others feel supported. She...

Kassady Oberacker

President & Founder at EDS Ohio

President and Founder of EDS Ohio, Kassady Oberacker is both an EDS advocate and patient living in Cuyahoga Falls, Ohio. Her background is in Applied Conflict Management and Psychology from Kent State University and...

Emily Ramthun

Event Planner, Executive Assistant, and Patient Advocate

Hello, my name is Emily. I am very excited to be a part of EDS Wisconsin, Inc. Within the organization I am an Event Planner, Executive Assistant, and Patient Advocate where I help connect...

Tammy Price

La Crosse Area Support

Tammy is a holistic health coach and allergy friendly chef. She believes that soup is good food, laughter is good medicine, and a good support system and self-care is a must. She volunteers because she does...

Delaney Olsen

EDS Awareness and Ambassador

Contact Delaney at

Myra Burkhardt

La Crosse Area Support Group Leader

Hello, my name is Myra and I am a physical therapist. I am the founder and CEO of Burkhardt Physical Therapy Center, LLC which was established in April 2001 with the help and encouragement...

Stacie MacWilliams

IEP and 504 Plan Consultant

Stacie will speak with families about school IEP’s and 504 Plans. She can be reached at or 608-469-9964

Beth Wroblewski

Kids & Teens Groups

Nikki Weber

Milwaukee Support

Kristi Bleeke

Nonprofit Professional Consultant

Kc Graveen

EDS Knowledgeable Licensed Professional Counselor IT

“K-C” strongly believes in the healing and therapeutic benefits of alternative approaches to therapy. As an art therapist she strives to adapt to the specific needs of her clients. She works from a person-centered...

Jennifer Erdman

Northeastern Wisconsin Support

Andrea Robinson

Promotions Consultant

Tom Young

Director of Development

Damon Weber

Assistant Researcher

Dawn Dembosky

Milwaukee Area Support Group Leader

Contact Dawn at

Andee Dunn

IEP and 504 Plan Advisor

Contact Andee at

Denise Gunby

Milwaukee Area Support Group Leader

Contact Denise at

Brandy Madison

La Crosse Support Group Leader, Web & Graphic Design, and Volunteer Training Manager

I’m a Christian mom of 3 outstanding young men and a grandma to 2 beautiful grandchildren. As I grew up, I always knew something was wrong with my body. I eventually got sick of...

Joc Polczynski

Musician and Ambassador

Contact Joc at

Leah Narans La Fleur

Educator and Madison Area Support Group Leader

Contact Leah at

Mary Brown

Madison Area Support Group Leader

Christine Feldschneider

Autism and EDS Resource Consultant, Family Support

Catherine Barrance

Strategic Consultant

Contact Catherine at

Michelle Stevens

La Crosse & Online Support Group Leader

Contact Michelle at

Sheryl Kostich

Milwaukee Area Support Group Leader

Contact Sheryl at

Kate Schultz

Senior Executive Assistant, Website Manager, and Educator

Contact Kate at

Johanna Young

Madison Area Support Group Leader & Event Planner

Reach Johanna at

Tracy Diehl

Social Media and Awareness

I was diagnosed with Ehlers-Danlos hypermobility type in 2007. Since then, I am always in search of the best strategies to care for my EDS body--understanding that it is important to be your own...

Stephanie Goettl Vander Pas

Spokesperson, Blogger & Advocate

Stephanie is a 27-year old EDS patient living in southern Wisconsin and while she considers that having EDS makes her a qualified blogger for the site, she thinks her strength and love of advocacy...

Christine Quackenboss

North Eastern Wisconsin Support

Hello! I live in Eden, WI with my husband (Chuck) and our dog (Remy). We have three grown children and 3.33 grandchildren (who are the light of our lives!). My career is Manager-Distribution Network...

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Together we are stronger!