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Our Volunteers
Rachel E. Framarin, B.A.W.I.E
President and Founder of EDS Illinois, Rachel is passionate about helping patients and medical professionals affected by Ehlers Danlos syndromes (EDS) and related disorders in Illinois. She is excited to utilize her extensive non-profit...
April T. Torres, RN
President and Founder of EDS Louisiana, April is very passionate about helping persons affected by Hypermobile EDS, Dysautonomia, POTS and MCAS. She wants to do everything she can to help others feel supported. She...
Kassady Oberacker
President and Founder of EDS Ohio, Kassady Oberacker is both an EDS advocate and patient living in Cuyahoga Falls, Ohio. Her background is in Applied Conflict Management and Psychology from Kent State University and...
Emily Ramthun
Hello, my name is Emily. I am very excited to be a part of EDS Wisconsin, Inc. Within the organization I am an Event Planner, Executive Assistant, and Patient Advocate where I help connect...
Tammy Price
Tammy is a holistic health coach and allergy friendly chef. She believes that soup is good food, laughter is good medicine, and a good support system and self-care is a must. She volunteers because she does...
Myra Burkhardt
Hello, my name is Myra and I am a physical therapist. I am the founder and CEO of Burkhardt Physical Therapy Center, LLC which was established in April 2001 with the help and encouragement...
Stacie MacWilliams
Stacie will speak with families about school IEP’s and 504 Plans. She can be reached at samteach27@gmail.com or 608-469-9964
Kc Graveen
“K-C” strongly believes in the healing and therapeutic benefits of alternative approaches to therapy. As an art therapist she strives to adapt to the specific needs of her clients. She works from a person-centered...
Brandy Madison
I’m a Christian mom of 3 outstanding young men and a grandma to 2 beautiful grandchildren. As I grew up, I always knew something was wrong with my body. I eventually got sick of...
Leah Narans La Fleur
Contact Leah at Leah.EDSWi@gmail.com
Michelle Stevens
Contact Michelle at Michelle.edswi@gmail.com
Kate Schultz
Contact Kate at kate.edswi@gmail.com
Johanna Young
Reach Johanna at Johanna.KnowEDS@gmail.com
Tracy Diehl
I was diagnosed with Ehlers-Danlos hypermobility type in 2007. Since then, I am always in search of the best strategies to care for my EDS body--understanding that it is important to be your own...
Stephanie Goettl Vander Pas
Stephanie is a 27-year old EDS patient living in southern Wisconsin and while she considers that having EDS makes her a qualified blogger for the site, she thinks her strength and love of advocacy...
Christine Quackenboss
Hello! I live in Eden, WI with my husband (Chuck) and our dog (Remy). We have three grown children and 3.33 grandchildren (who are the light of our lives!). My career is Manager-Distribution Network...