The Mission of EDS Louisiana is to provide support and resources to Louisiana patients and medical professionals about Ehlers-Danlos syndromes and related conditions via education and research.
Our Vision is a better Louisiana where EDS and related conditions are fully understood, treated and supported.
April Torres, RN, President and Founder
April is a Registered Nurse who graduated from Our Lady of the Lake College in Baton Rouge, LA in 2001. She worked in many areas of nursing including NICU, Neurology, LTAC, Home Health and Hospice. She served as the Assistant Director of Nursing at Magnolia Estates Nursing Home in Lafayette. Her favorite area of nursing was hospice. It never felt like a job to her. April is passionate about helping those who suffer from Ehler’s-Danlos syndromes and related conditions. She realizes the urgency and need for awareness to begin in the schools. She is committed to helping with the training of school teachers and parents to be able to identify signs and symptoms in children. Throughout her life she struggled, never understanding why she had so many unexplainable, debilitating symptoms. In March of 2019, she recieved an official diagnosis of Hypermobile EDS, Dysautonomia and POTS in Houston, Texas. She is committed to bringing awareness and support to Louisiana residents and medical professionals. She is known for teaching, “When you can’t Connect the Issues, think Connective Tissues.”
EDS Louisiana, Inc. was organized in August 2019. Thank you to Tammy Kosbab, President and Founder of EDS Wisconsin for having the vision for EDS Awareness and for coordinating, managing and growing an amazing organization that inspires!
EDS Louisiana started hosting in-person support groups in the fall of 2019.