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Thank you for supporting EDS Wisconsin in whatever way you can–and there are many. Your support through monetary contributions, event attendance, social media presence, supporting patients through mentorship and listening, following our blog, and even just by having an awareness of our experience with...
read MoreNovember 24, 2023
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May 4, 2020
Help us to provide support and resources to Wisconsin patients and medical professionals about Ehlers-Danlos Syndromes and related conditions via education and research.
Cash donations are the most helpful. Below is a list of items that we currently need. To make a donation, please contact us using the form below, and we will get in touch with you as soon as time allows. Thank you.
Contact Kate at [email protected]
Contact Leah at [email protected]
Hello, my name is Emily. I am very excited to be a part of EDS Wisconsin, Inc. Within the organization I like to help connect those in need (with a specialty in Dysautonomia, young...
President and Founder of EDS Ohio, Kassady Oberacker is both an EDS advocate and patient living in Cuyahoga Falls, Ohio. Her background is in Applied Conflict Management and Psychology from Kent State University and...
What people are saying about us…
Tammy Kosbab, co-founder of EDS Wisconsin, Inc., is extremely passionate about serving patients with Ehlers-Danlos syndromes and related disorders. Driven to improve the lives of patients in Wisconsin, Tammy works tirelessly and with great compassion. As a physician, I greatly appreciate Tammy’s organizational and communication skills as well as her dedication to bridging the gap between patients and healthcare providers. I have found Tammy to be reliable, caring and enthusiastic. It has been a true pleasure working with Tammy Kosbab and EDS Wisconsin Inc.
Dr Linda S. Bluestein, MD
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Thank you all for your kindness, thoughtfulness, and time you put into helping me get a computer. I’m so incredibly grateful! The surprise Tammy, Brandy, and Tyler pulled off was one of the most amazing experiences. This literally opens up my world. I now have the opportunity to do things I could never do before and had only dreamt about.
This community has become family and I’m honored to know all of you and be a part of your family. I’m humbled to be a part of team EDS Wisconsin. This is so big, and I can see how it helps others in the present and over time. The work we are doing through volunteering improves the quality of life by directly impacting people in ways I’ve never seen other organizations or support groups do before. Thank you. Thank you Thank you.
Michelle Stevens
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I wanted to tell you from the video you shared with myself and others about mast cells I could understand it from how you did your presentation. I have in the past read articles cut I came away more confused. But how you explained it made it easy to understand. I am looking forward to seeing more videos from you! You have a special way of explaining these difficult subjects & you’re helping so many of us with your knowledge <3
Sally Orlowski, .
Most helpful support group ever, not just the ppl although their wonderfully warm, but I’ve come away from the meetings with so much more knowledge, referrals & resources! They’ve helped me connect the dots about what’s going on with me, find specialists to help me and best of all I know that I’m not alone in this journey. Some of the ppl I’ve met at the meetings have so much in common with me that I hope we’ll be life long friends supporting each other in the struggle with this rare syndrome!
Gracie Murbach, .
Excellent resource for support and information about EDS.
Lynn Burgess, .
Any question our family has had, has always been answered. This is a judge free zone full of people who want to help one another.
Kathy Vandersteen, .
This is so great! I really appreciate all the time you put into helping me be my best leader and a better person for myself and a support for others. People look to me for that now and it’s such a wonderful and awesome responsibility. I understand the gravity of it and take it seriously, even through my goofy sense of humor.
Michelle Stevens.
EDS Wisconsin is very helpful-excellent resources, knowledgeable leaders, assistance finding EDS aware providers, excellent support groups and much more. Finding peer support is enormously beneficial. Knowing that others understand your circumstances and support you is invaluable. It is an honor to know the members and leaders of this organization. ???
Stacey Slottey.
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